Introducing the Tran Qol: A New Disease-Specific Quality of Life Measure for Children and Adults with Thalassemia Major

Robert J Klaassen^1*, Shabbir Alibhai², Melanie Kirby Allen³, Katherine Moreau⁴, Manuela Merelles Pulcini³, Melissa Forgie⁵, Victor Blanchette³, Rena Buckstein⁶, Isaac Odame³, Ian Quirt⁷, Karen Yee⁷, Durhane Wong Rieger⁸ and Nancy L Young⁹

¹Department of Pediatrics, Children’s Hospital of Eastern Ontario, Ottawa, Canada

²Division of Internal Medicine and Geriatrics, University Health Network, Toronto, Canada

³Department of Pediatrics, Hospital for Sick Children, Toronto, Canada

⁴Research Institute, Children’s Hospital of Eastern Ontario, Canada

⁵Department of Hematology, Ottawa Hospital, Ottawa, Canada

⁶Sunnybrook Research Institute, Sunnybrook Health Sciences Centre, Toronto, Canada

⁷Princess Margaret Hospital, Toronto, Ontario, Canada

⁸Anemia Institute for Research and Education, Toronto, Canada

⁹Human Kinetics, Laurentian University, Sudbury, Canada