Journal of Blood Disorders & Transfusion

Marilyn Kacica

Publications

• Research Article
  Transition to Adult Care: A Statewide Survey among Pediatric Hemoglobinopathy Specialty Centers in New York
  Author(s): Ying Wang, Keewan Kim, Katherine Harris, Geraldine Roth, Christopher Kus5, Marilyn Kacica, and Michele Caggana Ying Wang, Keewan Kim, Katherine Harris, Geraldine Roth, Christopher Kus5, Marilyn Kacica, and Michele Caggana
  
  Background: Transition from pediatric to adult medicine for young adults with special health care needs to be performed in an uninterrupted, patient-centered and comprehensive manner. In order to assess the health care status of children with hemoglobinopathies and identify plans and barriers in transition from pediatric to adult care, we conducted a statewide survey among hemoglobinopathy specialty care centers that receive newborn screening referrals. Methods: An invitation via email with a link to the web-based survey containing 16 questions regarding transition to adult care was sent to center directors of all 33 hemoglobinopathy specialty care centers in New York State. Non-responders were contacted and asked to complete the survey over the phone. Results: Overall, 28 (85%) of 33 centers completed the survey. Adult care was provided in all responding centers; 39% had transition p.. View More»
  DOI: 10.4172/2155-9864.1000169

  Abstract PDF